The Hip Hope Network

Updated: May 11



So at the beginning of this blog journey of mine, I shared my favorite cartoon video of a little green frog and I titled my blog post, The Little Frog And Your Hip Hope. So fast forward two and half years later and I'm talking about another green frog and hip hope. This time this little froggy is actually focused on Hip hope for kids so they can hop to hip health. How coincidental is that?

I just also posted about the first annual Hip Health Day (#hiphealthday) and this post is giving you some background on the organization behind this amazing celebration. I was fortunate to have a chance to meet this group of incredible hip healers last week and they have been so kind as to answer some questions for you hippies!


What is the "why" behind the forming of your organization?


Global problems demand worldwide, collaborative engagement. Pediatric hip

conditions are a global challenge which can be addressed through active work. The Hip

Hope Network offers a platform for hip experts to meet this challenge, actively working

to include and amplify voices around the world. Traditionally collaborations have

occurred within North America and among English-speaking nations, however we aim

for this network to be inclusive beyond this narrow scope.


We work towards improved health and wellbeing for patients, with a focus on local

solutions driving global change.


Dr. Kishore Mulpuri

What is your organization's mission statement?


Our working mission statement is: “A solution for every hip health challenge”


What do you see as the primary role of Hip Hope Network?


Our primary role is to act as a global

hip health network and resource

platform, connecting and enabling

hip health advocates and allies, in

their work.


Who is your primary audience?


Our primary audience is hip experts, including clinicians, allied health practitioners,

and researchers and patients and families. We also aim to form partnerships with

advocates.


What are some ways that the Hip Hope Network helps to engage with the global hip community?


So far we’ve brought together clinicians, researchers and allied health personnel from around the world to work together to form the network. We’ve engaged with surgeons and physiotherapists so far from Europe, Asia, North America, South America and Australia. As the network is still being established, we have yet to reach out to the community at large.


Although you are an organization that focuses on pediatrics, many pediatric patients grow up into adults. Will you also be supporting those adults who had/have pediatric hip disorders?


Absolutely! As many adult hip conditions originate during growth and development,

early diagnosis and treatment leads to improved outcomes for all. We are also going to

work on the continuum of hip health from pediatrics into adulthood.


What type of research is the Hip Hope network looking to be involved in?


The major focus of the network research will be to create registries for rare hip

conditions. Registries are databases of patient information collected from initial

diagnosis to skeletal maturity and includes information about how they were

diagnosed, what treatments were provided and the outcomes of these treatments.

Many of the clinicians working to form the network have already successfully built or

participated in registries like the International Hip Dysplasia Registry (IHDR), Slipped

Capitol Femoral Epiphysis (SCFE) Longitudinal International Prospective Registry

(SLIP), Outcomes of Hip Interventions for Children with Cerebral Palsy (CHOP),

International Perthes Studies Group Registry (IPSG) and the Academic Network of

Conservational Hip Outcomes Research (ANCHOR). However, there are other pediatric

hip conditions that are rare and affect a relatively small number of patients. This makes

studying these conditions difficult. Large numbers of patients are usually needed to

investigate new treatments, screening protocols or surgeries. By involving clinicians

globally in the network, we’ll be able to include much greater numbers of these

patients to hopefully answer some of the burning questions related to treatment and

outcomes. Also by including patients from around the world, any studies that we

develop within the registries will be more globally relevant with a diverse population.


If you could impart on hip patients and their parents one message as they travel through their journeys, what would it be?


Most of these conditions can be treated so that people can carry on with their life’s

goals and aspirations. Earlier diagnosis when less complex interventions are successful

is required. We aim to raise awareness and advocate for patients and families in order

to improve outcomes and quality of life.


Can we see the faces of your team who are helping out with this hip advocacy?



HIPpy Research Lab


Does any music, song or poem speak to your message?

We are actually working on creating a song (HIPpy song).


[A poem that speaks to our message is]


‘Do not be daunted by the enormity of the world’s grief.

Do justly, now.

Love mercy, now.